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Local and National Meetings



The Wolf Hirschhorn Syndrome Trust currently holds regular Trustee Meetings on a twice yearly basis (a copy of the Meeting Minutes may be available to families listed on our database upon request). You may ask questions to be raised at these meetings. 

If you wish to contact either our Chairman (Stephen D'Allenger-Bradshaw) or our Co-Chairman (Damien Douglas) or any other Trustee, Committee Member or Regional Coordinator please refer to the email listings on the COMMITTEE page.

A National Meeting for families is currently held on a biennial basis (the next being the first May Bank Holiday in 2019) and there are also Regional Gatherings currently on an adhoc basis.

Please see link for the invite to the 2019 National Meeting. WHST Event Invite 2019