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The Wolf Hirschhorn Syndrome Trust currently holds regular Trust Committee Meetings on a twice yearly basis (a copy of the Meeting Minutes may be available to families listed on our database upon request).

If you wish to contact either our Chairman (Stephen D'Allenger-Bradshaw) or our Co-Chairman (Damien Douglas) or any other Trustee, Committee Member or Regional Coordinator please refer to the email listings on the COMMITTEE page.

A National Meeting for families is currently held on a bi-Annual basis (the next being April 2017) and there are also Regional Gatherings currently on an adhoc basis.