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TERMS OF USE

TERMS AND CONDITIONS OF USE

Please read the following terms of use carefully before using the Wolf Hirschhorn Syndrome Trust Site. Using
this site indicates that you agree to our Terms of Use. If you do not accept our Terms of Use, do not use this site.
The Wolf Hirschhorn Syndrome Trust reserves the right to change, modify, add or delete any items and
conditions of the Terms of Use from time to time at it’s sole discretion, so you should periodically come back
and review these terms. Your use of this Site will be subject to the most current version of the Wolf Hirschhorn
Syndrome Trust Site Terms of Use at the time of such use.

DEFINITION

In the Terms of Use, “Contents” means any and all text, graphics, photos, pictures, line drawings, animations,
audio, video and/or any other materials that are provided, posted, viewed, transmitted, reproduced and/or
distributed by any private person, legal person or entity in connection with this Site.

RESTRICTED USE OF CONTENTS

The site is owned and controlled by the Wolf Hirschhorn Syndrome Trust. You may download a copy of allowed
Contents on a single computer and reproduce, modify, output, transmit or distribute such Contents free of
charge for non-commercial use only. You may not use contents in any manner except as permitted an these
Term of Use. Unauthorized use or any other use, including commercial use of Contents, causes infringement of
copyright of the Wolf Hirschhorn Syndrome Trust and/or other rights of any third party. Any and all trademark,
service mark or trade name in this Site is the property of the Wolf Hirschhorn Syndrome Trust or any Third party
cited herein.

CONTENTS OWNERSHIP

You warranted that you are the sole owner of your Contents posted by you on the Site and entitled to license
any (related) rights of such Contents including copyright. You agree to share the Contents you posted on the
Site with others free of charge and agree not to prevent such other users from viewing your Contents. You will
keep ownership of the copyright and appropriate licenses in connection with your Contents, provided that you
agree that the Wolf Hirschhorn Syndrome Trust reserves the copyright relating to your Contents stored on the
database of the Site and of all derivative works of your Contents. If you notice that your Contents posted on the
site infringe or may infringe any Third Party’s copyright or other right, you shall immediately notify the Wolf
Hirschhorn Syndrome Trust by email.

USE OF THE SITE

The Wolf Hirschhorn Syndrome Trust understands and respects your desire for privacy. Any Contents posted
in the site are available only to those invited to the Site. When you are voluntarily participating in and posting
your Contents to the Site, you agree that the Contents may be viewed, and possibly collected and used by
others who (will) visit your Content. The Wolf Hirschhorn Syndrome Trust has taken reasonable measures to
prevent unauthorized access to the Content on the Site by means of Username and Password. Additional steps
have been taken to prevent unauthorized printing or saving of the Content posted therein.

PERSONAL INFORMATION AND PRIVACY POLICY

When you post your Contents on the Site, you are asked to provide your name, address, age and e-mail address
(collectively ‘Personal Information’). The Wolf Hirschhorn Syndrome Trust collects information from you for
membership contact purposes. Personal information is stored and used to create an account for viewing and
storing the Content on line. Your Username and Password are required to login and access the Content on this
Site. The Wolf Hirschhorn Syndrome Trust assures you that any information you submit to us will remain
absolutely private. The Wolf Hirschhorn Syndrome Trust believes that your personal information, including your
e-mail and residential address and phone number, belong to you, We do not rent or sell your information to
third parties.

PASSWORD POLICY

You agree not to use any other person’s Username and Password and agree to keep your Username and
Password secret. The Wolf Hirschhorn Syndrome Trust may monitor the security of your Username and
Password at any time. If your Username and Password are determined to be insecure, The Wolf Hirschhorn
Syndrome Trust may, at it’s sole discretion, change your Username and Password.

DESTRUCTION OF CONTENTS

The Wolf Hirschhorn Syndrome Trust reserves the right to remove and destroy Contents or any inferior image
quality contents from this site. You agree that the Wolf Hirschhorn Syndrome Trust shall not be responsible for
screening, policing, editing or monitoring of Contents submitted, posted, viewed, transmitted, reproduced
and/or distributed by you on the Site. You agree that the Wolf Hirschhorn Syndrome Trust shall never be liable
for any kind of rejection, removal or destruction of inferior Contents; if the Wolf Hirschhorn Syndrome Trust
should reject to post and/or remove or destroy such Contents from the Site.

LINKS TO OTHER SITES

The Wolf Hirschorn Syndrome Trust explicitly disclaims any responsibility for the accuracy, content or
availability of information found on sites that link to or from third parties not associated with the Wolf Hirschhorn
Syndrome Trust. The Wolf Hirschhorn Syndrome Trust is not responsible for the privacy practices of the content
of such Web sites. You hereby irrevocably waive any claim against the Wolf Hirschhorn Syndrome Trust with
respect to such third party’s site. The Wolf Hirschhorn Syndrome Trust shall not endorse any of the merchandise
nor has the Wolf Hirschhorn Syndrome Trust taken any steps to confirm the accuracy or reliability of any of the
information contained in such third party’s site. The Wolf Hirschhorn Syndrome Trust shall not make any
representations or warranties as to the security of any information including credit card and other personal
information, that you might be might be requested to give any third party. You hereby irrevocably waive any
claim against the Wolf Hirschhorn Syndrome Trust with respect to such site(s).

INDEMNIFICATIONS

You agree to indemnify, hold harmless and/or defend the Wolf Hirschhorn Syndrome Trust, it’s Officers,
Directors, Employees, Agents, Successors, Subsidiaries, Sub-Licensees and Assigns, from and against any and
all claims, damages, losses, costs and liabilities excluding reasonable solicitor’s fees and court costs, arising
out of or related to any breach of these Terms of Use by you or anyone else, including your guest(s), that is
using your Username and Password. You agree to settle any problem or issue arising out of usage of the Site
between you and your Guest(s) whom you invited to the Site at your own responsibility and agree to hold the
Wolf Hirschhorn Syndrome Trust harmless from and against such problems or issues.

WAIVER

You release and waive your right and that of your minor offspring under the age of 13, assigns and successors,
to bring suit against the Wolf Hirschhorn Syndrome Trust and the above-reference affiliated persons and entities
for any injury or damage allegedly arising from (your) use of the Site, including any injury or damage you may
suffer as the result of viewing, uploading or downloading any contents in this Site.
SOME COUNTRIES DO NO ALLOW THIS WAIVER, SO THIS WAIVER MAY NOT APPLY TO YOU. YOU MAY
HAVE OTHER RIGHTS, WHICH MAY VARY FROM COUNTRY TO COUNTRY.

LIMITATION OF LIABILITY

Under no circumstances, including but not limited to negligence, shall the Wolf Hirschhorn Syndrome Trust be
liable for any special or consequential damages that result, arising out of your use or inability to use the Site,
and any of the Site Contents, services and/or related software.
SOME COUNTRIES DO NOT ALLOW THE EXCLUSION OR LIMITATION OF LIABILITY, SO THIS EXCLUSION
MAY NOT APPLY TO YOU. YOU MAY HAVE OTHER RIGHTS, WHICH VARY FROM COUNTRY TO COUNTRY.

DISCLAIMER OF WARRANTY

Any Contents and services in this site are provided ‘as is’ and without warranties of any kind, either expressly or
implicitly. The Wolf Hirschhorn Syndrome Trust makes every effort to control and operate the Site, provided that
the Wolf Hirschhorn Syndrome Trust shall not warrant that any part of this Site will be uninterrupted, error-free,
and free of viruses or other harmful component that may cause the destruction of Contents. The Wolf Hirschhorn
Syndrome Trust shall not warrant or make any representations regarding the use and services of this Site or the
results of the use of the Contents in terms of the quality, corrections, accuracy, reliability or otherwise. You
assume the entire cost of all necessary servicing, repair or correction. The Wolf Hirschhorn Syndrome Trust
shall not endorse any comments or opinions contained or implied in any Contents made available through this
Site by you and/or your guest(s). The use, distribution or publication of any Contents within this Site shall not
constitute or imply an endorsement by the Wolf Hirschhorn Syndrome Trust of such Contents or of any opinions
or comments contained in such Contents.
SOME COUNTRIES DO NOT ALLOW THE EXCLUSION OF IMPLIED WARRANTIES, SO THIS EXCLUSION MAY
NOT APPLY TO YOU. YOU MAY HAVE OTHER RIGHTS, WHICH VARY FROM COUNTRY TO COUNTRY.

TERMINATION

The Wolf Hirschhorn Syndrome Trust reserves the right to terminate your access to this Site for violation of the
Terms of Use or applicable laws, or as the Wolf Hirschhorn Syndrome Trust otherwise deems appropriate
without notice and without cause at any time, The Wolf Hirschhorn Syndrome Trust may discontinue it’s services
provided by this Site at any time without notice and without cause. You hereby irrevocably waive any claim
against the Wolf Hirschhorn Syndrome Trust with respect to such termination of access or discontinuation of
service. You acknowledge that the Wolf Hirschhorn Syndrome Trust may destroy any Contents you (will) post to
this Site at it’s sole discretion upon termination of this Site. Upon termination by any party, either terminated by
a user of this site or the Wolf Hirschhorn Syndrome Trust, you agree to destroy all and any materials and
contents obtained from this Site.

SEVERABILITY

If one of the Articles of the Terms of Use is not to be valid or enforceable, then such provision shall be given no
effect and deemed not to be included within the terms of these Terms of Use, without invalidating the other
Articles. An Article nearest to the purpose intended by the invalid Article shall replace the Article concerned.

AMENDMENT

The Wolf Hirschhorn Syndrome Trust retains the right to amend these Terms of Use from time to time. Your
continued use of this Site constitutes your acceptance of such amendments. If you find changes in these terms
in some way that are unacceptable, you agree to discontinue your use of the Site.

NOTICE

All notices in connection with this Site in these Terms of Use shall be sent via E-mail to the Wolf Hirschhorn
Syndrome Trust and will be announced in the Wolf Hirschhorn Syndrome Trust Newsletter. The E-mail Notice
and Newsletter Notice shall be deemed received and read, irrespective of whether or not it has been opened.

MISCELLANEOUS

These Terms of Use constitute the entire agreement of the parties with respect to the subject matter hereof and
supersede all previous written or oral agreements between the parties with respect top such subject matter.
These Terms of Use shall be construed in accordance with the laws of the United Kingdom. No waiver by either
party of any breach or default hereunder shall be deemed to be a waiver of any preceding or subsequent
breach or default. The section headings used herein are for convenience only and shall not be given any legal
import.

PERMISSION (IF NEEDED)

The Wolf Hirschhorn Syndrome Trust has written permission of the participants who are posing in photographs
published in the Site or mentioned in the Contents as attested by my signature below:
To post pictures you must print, sign and mail this Terms of Use Agreement to:

Margaret Begent
Secretary
Wolf Hirschhorn Syndrome Trust
62 Harwood Avenue
Hornchurch
Essex RM11 2NV

Print Name________________________________________________

  Signature__________________________________________________

  Date _____________________________________________________